Finding Help for the High Costs of Cancer Care

This article from the Philadelphia Enquirer contains valuable information about the high cost of cancer care and the options people have in managing those costs.

The good news is more Americans are surviving cancer.

The bad news? We pay big bucks to stay free and clear of the disease.

Nearly 14.5 million American cancer survivors remain alive and well as of Jan. 1, 2014, according to the American Cancer Society, the National Cancer Institute, and the Centers for Disease Control and Prevention. By 2024, cancer survivors will number 19 million people.

So how much does it cost to stay cancer-free? Quite a lot, says Zhiyuan Zheng, Ph.D. and senior health services researcher with the American Cancer Society in Atlanta.

For American men, the three most prevalent types of cancer among survivors are prostate (43 percent), colorectal (9 percent), and melanoma (8 percent). Breast (41 percent), uterine (8 percent), and colon and rectum (8 percent) are most common among women who survive cancer.

Prostate, colorectal, and breast cancers account for about 30 percent of all cancer-related health-care costs. The survivors incur higher medical expenses, are at higher risk of secondary cancer, and require more tests and follow-up care.

Total cancer treatment costs in 2004 were $72 billion, about $120 billion in 2014, and will increase to $180 billion by 2024, Zheng adds.

How does that break down per person? In the first 12 months, breast cancer treatment costs roughly $20,000, colorectal cancer $30,000, and prostate $10,000.

Lost workdays add to the total annual economic burden per cancer survivor: $20,238 for colorectal, $14,202 for breast, and $9,278 for prostate, for those under age 64, the researchers found.

Fortunately, cancer patients can now turn to medical bill negotiators who bargain with medical providers.

“We have a number of cancer patients who’ve hired us. Plus we’re also seeing a higher success rate” among cancer patients, says Derek Fitteron, founder and CEO of Medical Cost Advocate in Wyckoff, N.J.

One customer was a family facing $125,000 in bills incurred in a year for treatment of a rare childhood cancer.

“We reviewed the bills for billing accuracy and found comparable pricing negotiating savings of more than $85,000 with several Pennsylvania facilities,” Fitteron said.

Resources Cancer maintains a list of organizations that help patients financially

The Cancer Financial Assistance Coalition is a group of national organizations that provide financial help.

The nonprofit CancerCare provides limited financial assistance to people affected by cancer. It also has a foundation to help fund copays, the CancerCare Patient Assistance Foundation

The HealthWell Foundation similarly provides financial assistance to cover copayments, premiums, and deductibles for certain medications and therapies.

Partnership for Prescription Assistance helps qualifying patients who lack prescription-drug coverage obtain the medications they need.

Needy Meds offers information on companies assisting those who can’t afford medication.

The Patient Access Network Foundation assists patients with out-of-pocket costs associated with their treatment.

Patient Services Inc. assists with insurance premiums and copayments for people with chronic diseases.

RxHope.com helps patients obtain free or low-cost prescription medications.

The Assist Fund provides financial support to chronically ill patients with high-cost medications.

The Patient Advocate Foundation provides education, legal counseling, and referrals for people with cancer who need assistance managing insurance, financial, debt crisis, and job-discrimination issues.

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Insurance companies to blame for ‘surprise’ medical bills: state report

Are you paying more for healthcare even when using an in-network provider? A recent report from the Department of Financial Services in New York State found that an alarming amount of consumers are faced with a greater out-of-pocket expense as insurers and providers are shifting the cost of care to them.

Greg B. Smith / NEW YORK DAILY NEWS

Big insurance companies and some greedy doctors are to blame for the growing number of New Yorkers whacked with “surprise” medical bills, a state inquiry has found.

Department of Financial Services Superintendent Benjamin Lawsky Wednesday released the results of his probe into the unanticipated bills that are slamming consumers.

“Simply put, surprise medical bills are causing some consumers to go broke,” the report states.

The Daily News has highlighted this problem with a series of stories over the last two months. Lawsky promised to push for reforms.

“Every time I have mentioned this issue to a crowd of people, I see nodding heads,” he said. “If that’s happening, it is a huge issue.”

His agency reviewed 2,000 complaints from 2011 and surveyed the 11 big insurers and HMOs who cover 95% of the New Yorkers who have health insurance.

The review found that patients who went out of their way to make sure the non-emergency treatment they sought was covered by their plan still wound up with bills from specialists — such as assistant surgeons, anesthesiologists and radiologists — who were outside their plan.

That’s because insurers often don’t make clear who will be involved and how much it will cost, the report found.

One patient who complained to the Financial Services department made sure to go to an in-network hospital for brain surgery but wound up with a surgeon who wasn’t in his plan. The surgeon billed him $40,091 and the insurer covered only $8,386 – leaving him to cough up $31,704.

Sherry Tomasky, advocacy director of the American Cancer Society, praised the report and criticized the “undue financial burdens that are often placed on (patients) at a time when they are least able to handle it – both financially and emotionally.”

DFS quoted ridiculously complex language one insurer cited in claiming it met its disclosure requirements: “reimbursement is based on a percentile of national prevailing charge data compiled for a specific procedure and adjusted for geographic differences.”

“Unfortunately, language such as this does not provide consumers with meaningful information,” the department wrote.

The review also documented complaints that a “small but significant number” of doctors “appear to take advantage of the fact that emergency care must be delivered” by inflating bills for treatment that’s not covered.

The survey found out-of-pocket costs for out-of-network radiology or x-ray services during emergency care averaged $2,910; for anesthesiology it was $1,794.

The Health Plan Association, the lobby group representing insurers, praised the report for shining a light on excessive bills by doctors for ER care.

“These egregious practices contribute to the rising cost of health insurance for New Yorkers,” Paul F. Macielak, HPA president, said.

The report also noted that insurers have been reducing coverage for out-of-network care and making it tougher to file claims.



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HHS Issues Regs on Insurance Rate Increase Disclosure and Review

Read about the regulations concerning the new Affordable Care Act. Insurers will now have to justify any large or significant rate increases.


New proposed Affordable Care Act (ACA) regulations announced today by the U.S. Department of Health and Human Services (HHS) are intended to bring new transparency and scrutiny to proposed health insurance rate increases. These proposed rules allow HHS to work with states to require insurers to publicly disclose and justify unreasonable rate increases.

The ACA has already begun to help states strengthen or create rate review processes, HHS said. On August 16, HHS awarded $46 million to 45 states and the District of Columbia to help them improve their oversight of proposed health insurance rate increases. This is part of $250 million that the healthcare reform law makes available to states to take action against insurers


Today’s proposed regulations will build on these efforts by requiring insurers in all states to publicly justify any unreasonable rate increases beginning in 2011, as described in an HHS fact sheet. In 2011, proposed rate increases of 10 percent or higher will be publicly disclosed and thoroughly reviewed to determine if the rate increase is unreasonable. After 2011, state-specific thresholds would be set using data and trends that better reflect cost trends particular to each state. An insurance company’s justifications for unreasonable increases will be posted on HealthCare.gov and the insurance plan’s website.

Under the proposed regulation, states with effective rate review systems would conduct the reviews. If a state lacks the resources or authority to do thorough actuarial reviews, HHS would conduct them. Meanwhile, HHS will continue to make resources available to states to strengthen their rate review processes.

In 2014, the ACA empowers states to exclude health plans that show a pattern of excessive or unjustified premium increases from the new health insurance exchanges.


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If Healthcare Reform Fails: Fewer Well-Insured Patients Will Leave Doctors Hurting

Is the current Medicare reimbursement method flawed?  It depends on your perspective, but one thing appears more and more apparent – the recent healthcare reform bill does not appear to be a solution to the problem.

BNET Today

Judging by the opposition of surgical societies and some state medical societies to the Senate healthcare-reform bill passed last December, many physicians — particularly highly paid specialists — are relieved now that it appears the legislation is on its deathbed. But they shouldn’t be too gleeful, because in the absence of reform, fewer and fewer patients will be able to afford their services.

Just ask Clyde Yancy, a cardiologist who heads the American Heart Association (AHA). Yancy cited a recent AHA survey of heart patients in explaining why he believes that reform of the system is still necessary. In the survey of 1100 adults who said they had heart disease, a stroke, or high blood pressure, 56 percent of the respondents — most of whom had insurance — said they’d had trouble paying for prescription drugs or medical care in the past few years.

In an op-ed piece about the survey in a trade publication, Yancy referred to the “collective sigh” of relief among physicians about the stalling of reform and suggested that it’s premature. “The need for the discussion has not gone away,” he said. “If anything, that need is highlighted by this survey.”

Of course, Yancy is walking a fine political line. He chose not to highlight the financial pain doctors will feel as insurance coverage shrinks, and instead focused on the problem of patients not receiving proper care because they can’t afford it. But his intended audience of heart doctors can certainly read between the lines, particularly since they’re already battling to preserve their incomes in light ofsome recent Medicare changes.

Last fall, Medicare announced changes in its reimbursement methodology that basically lowered payments to specialists while raising them for primary-care physicians. Cardiologists, among the hardest hit specialists, were slated to lose an average of eight percent in 2010 and more in the ensuing three years. The new fee schedule also slashed payments for nuclear scans by 40 percent and cut the fees for echocardiograms and other tests by about a third. In late December, the American College of Cardiology (ACC) sued HHS Secretary Kathleen Sebelius to reverse the cuts scheduled to take effect Jan. 1. Two weeks later, a federal court in Miami dismissed the suit on jurisdictional grounds, but the ACC pledged to carry on the legal fight.

The cardiologists, of course, claim that the drop in Medicare payments for high-end imaging tests will drive some of them out of business and that they’ll have to cut back on the services for the poor. In actuality, though, heart doctors have steadily ramped up their use of tests and other services to maintain their incomes. A study released last fall by cardiology services provider MedAxiom found that visits to cardiologists had risen 12 percent in 2009 and that return visits had climbed 34 percent since 2000. Meanwhile, the number of echos that cardiologists performed jumped 15 percent in 2009 and 43 percent in the previous five years.

These numbers highlight the main issue: the more Medicare cuts back on reimbursement, the more tests, procedures and follow-up visits physicians do. And the more doctors do, the more Medicare cuts its fees. The only solution is to dump the fee-for-service payment system — a goal that some of the provisions in the healthcare reform legislation would move us toward. Having to live within a budget would upset cardiologists even more than the recent Medicare cuts. But it’s hard to see how their patients will be able to afford their services in the long run under any other reform plan.

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Hijacked, Stolen Health Care Reform: Why Health Care Costs Will Not Be Contained

Costs continue to rise even with the passage of landmark healthcare reform. Read the following article for an interesting take on outcomes of the new reform.

John Greyman

The passage of the Patient Protection and Affordable Act of 2010 (PPACA), our new health care legislation, in March was hailed by its supporters as an historic event of the magnitude of Social Security and Medicare. But four months later, it remains controversial, with repeated polls showing three large groups of divisive opinion, including those who would work to repeal it and others who believe that it will make no difference. The Democrats have launched a $125 million PR campaign to defend the new law amidst growing signs that many Democrats facing re-election are failing to get political traction on the issue. (1)

We are being advised by many to “wait and see” how this complex new bill plays out over the next five to ten years, but we can already know what its outcomes will be. More than 30 years of health policy science, including documentation of the repeated failures of incremental changes built into the new law, together with well-entrenched trends in our market-based system, allow us to project its outcomes with confidence. For this legislation has been molded and crafted by the political power and money of corporate stakeholders in the medical-industrial complex.

Five previous posts in 2009 described the uneasy “alliance” of the five biggest players — the insurance industry, the drug industry, the hospital industry, business and organized medicine. They will do just fine with the new law at the expense of patients, families and Main Street.

Health care “reform” this time around was intended to address these four basic system problems: (1) containing health care costs, (2) making health care more affordable, (3) increasing access to care, and (4) improving the quality of care. This post introduces a series of five that will examine how well the PPACA will do on each of these four goals, followed by an overall assessment of the law. These posts will draw in part from my new book Hijacked: The Road to Single Payer in the Aftermath of Stolen Health Care Reform, soon to be released by Common Courage Press in both print and eBook format.

Continued Unrestrained Drivers of Health Care Costs

These are some of the many reasons that we can already conclude that health care costs will continue to run out of control at rates far exceeding the costs of living and median household incomes.

• No price controls. Wall Street has already factored in rapid expansion of markets for drugs, medical devices and other services in a system of expanded access. There is also a long line forming of providers of information technology and administrative services that will exploit the complex implementation of this law.

• No bulk purchasing. The PPACA has prohibited the government from negotiating the prices of prescription drugs and retains a ban on importation of drugs from Canada and other countries.

• Lack of control over perverse incentives that drive increased volume of services. These in turn are driven by retention of fee-for-service (FFS) reimbursement that encourages physicians and other providers to offer more services than are medically appropriate or necessary.

• No effective mechanism to rein in marginal or ineffective technologies. Coverage policies for new drugs and medical devices are still lax and not subject to rigorous evidence-based criteria for either efficacy or cost-effectiveness.

Although the PPACA does call for a Patient-Centered Outcomes Research Institute, its role is already neutered by not having the power to mandate or even endorse coverage or reimbursement rules for any particular treatment. (2)

• The dominant business model of health care prevails, with many facilities and services remaining for-profit and investor-owned and with an ongoing trend for increasing consolidation within industries.

• The PPACA has grandfathered-in specialty hospitals, typically physician-owned facilities that focus on well-reimbursed procedures in such areas as cardiology and orthopedics, whereby physicians can “triple dip,” earning high incomes as providers, owners and investors.

• More preventive services will further fuel health care inflation. While the PPACA does provide new coverage for many preventive services, this will lead to increased costs due to additional diagnostic and treatment services engendered. (3)

• Private insurers can’t contain health care costs, even where they have dominant market power. A 2009 report by the Congressional Research Service, “The Market Structure of the Health Insurance Industry,” concludes that:

The exercise of market power by firms in concentrated markets generally leads to higher prices and reduced output — high premiums and limited access to health insurance — combined with high profits. (4)

• There are no controls over premium rate increases by insurers. Despite the outcry by government officials, annual premium rates are escalating at rates up to 56 percent (5), and there is no end in sight for continued exorbitant rate increases. Insurers will continue to game the system by extracting maximal profits and offering reduced coverage with actuarial values (the amounts insurers actually pay in coverage) as low as 60 or 70 percent.

• National health care spending will grow unabated despite the passage of
PPACA. The Centers for Medicare and Medicaid Services (CMS) projects that overall national health expenditures (NHE) will increase from its present 17 percent of GDP to 21 percent in 2019, a total of $4.470 billion. (6)

These well-documented trends leave no room to think that health care “reform” will have any chance to contain health care costs. Instead, health care inflation will be exacerbated by all the new incentives and inefficiencies in the new “system.” In our next post we will examine the impact of these trends on affordability of health care.

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Doctors tack on ‘a la carte’ fees for patients

It appears that physicians are now charging ‘a la carte’ fees for services not traditionally covered by insurance or Medicare. The extra fees mean greater out-of-pocket costs for consumers. Read on to learn more.

By Alison Young • USA TODAY •

A growing number of doctors across the country are boosting revenue by asking patients to pay new fees for services they say insurance doesn’t cover, insurance and physicians’ groups say.

The extra payments include no-show fees of $30-$50 for missed appointments, widely varying charges for filling out health forms for school, work or athletic teams, and annual administrative fees of $35-$120 or more to simply be a patient in some practices, medical associations and doctors say.

“It’s not unlike the airlines,” said William Jessee, president of the Medical Group Management Association, which generally advises against extra fees that may anger patients or run afoul of insurance contracts. “They’ve gone from all-inclusive to a la carte. That’s what you’re seeing with physicians.”

Doctors who charge extra fees are in the minority, he said. Some have done it for years, but more are joining them because they say they need the fees to offset the rising costs of practicing medicine.

Allen Greenlee, an internist in Washington, sent a letter in March to 7,000 patients in his group practice asking for a voluntary $35 annual administrative fee for costs insurance didn’t cover. He said he got only two angry letters and dozens paid extra to help others. “I’m trying to stay solvent,” he said.

WellPoint, the nation’s largest insurer by membership, is receiving more inquiries from doctors seeking to charge annual administrative fees.

“We have seen some increase in that type of activity,” said John Syer, a vice president over provider contracting at WellPoint, which operates 14 Blue Cross and Blue Shield plans. “The vast majority do not engage in that,” Syer said, noting such fees may violate provider agreements if doctors charge for items insurers consider included in their payments.

Though no national data are available on how many practices charge extra fees, Jessee said primary care doctors face increased financial pressures as insurance reimbursement hasn’t kept pace with costs. The result has been a growing shortage of primary care physicians as medical students choose more lucrative specialty fields. Primary care is critical to the nation’s new health law, which will give 32 million uninsured Americans coverage.

Office visits are the main source of insurance payments to primary care doctors, yet physicians spend much of each day on activities they’re not directly compensated for, such as phone calls and prescription refills, a study in The New England Journal of Medicine in April found.

“A lot of doctors are trying all kinds of experimental things just to survive,” said Gary Seto, a doctor in South Pasadena, Calif., who charges an annual $120-per-family “non-covered benefits fee.”

Sue Braga of the Arizona chapter of the American Academy of Pediatrics said she’s hearing of more practices charging for no-shows and health forms.

Susan Wheeler, 33, said her kids’ pediatrician near Atlanta recently started a $10-per-child form fee. “I don’t like it,” she said. “It’s part of their job.”

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